Feeling over-whelmed after a diagnosis of breast cancer can contribute to stress, anxiety, and depression, all part of a normal response. What is ‘not’ normal is asking for help, especially if you are a self-reliant, independent woman. If you are the one everyone always counts on for help, this extremely difficult time can be a humbling experience. http://www.thebreastcaresite.com/tbcs
Breast Cancer Support Links
Cancer in General: Organizations and Foundations
American Cancer Society
www.cancer.org
Or call: 800.227.2345
Excellent site for all cancers; Good information on chemotherapy drugs.
American College Plastic & Reconstructive Surgery
www.plasticsurgery.org
Or call: 800.635.0635
Comprehensive information on cosmetic and reconstructive plastic surgery procedures and physician referral lists.
American College of Radiology
www.acr.org
Or call: 800.227.5463
Mammogram search by city and state (low-cost and free listings available in October).
Association of Online Resources
www.acor.org
Sponsors listservs on all different kinds of cancers; the mother of internet discussion sites
CancerCare
www.cancercare.org
Or call: 800.813.4673
Provides emotional support, financial assistance and financial assistance referrals.
Cancer.com
www.cancer.com
A general cancer center that connects those whose loved ones are touched by cancer to credible cancer web resources.
Cancervive
www.cancervive.org
Emotional support, information and advocacy
Chemo Care
www.chemocare.com
Or call: 800.552.4366
Program of Scott Hamilton, provides up-to-date information on chemotherapy.
Chinese Cancer Hotline
Call: 888.566.622
National hotline for Chinese cancer patients.
4ANEMIA.com
www.4anemia.com
A web site that provides comprehensive information about chemotherapy- related anemia, a common side effect of cancer treatments.
Gilda's Club (National Hotline)
www.gildasclub.org
Or call: 888. GILDA-4-U (888.445.3248)
Information and support for all cancer patients and their famiies to meet; also offers free classes.
Hospice (National)
www.nho.org
Or call: 800.331.1620
Provides comfort and support to patients and their families when a life-limiting illness no longer responds to treatments.
Inflammatory BC Research Foundation
www.ibcsresearch.org
Or call: 877.786.7422
The ibc Research Foundation's mission is for inflammatory breast cancer research and public awareness of ibc and its symptoms. The Foundation has three email lists.
Lesbian Survivors
Call: 800.350.5170
Mautner Project for Lesbians
www.mautnerproject.org
Or call: 202.332.5536
Provides services to lesbians with cancer (and to their partners), advocating for benefits, volunteer services, transportation to and from treatment, legal assistance, support groups, library.
National Cancer Institute
www.nci.nih.gov
Totally redone this is a great site for all cancers. Information is given at three levels of complexitiy. It also links to the clinical trial registry.
National Coalition for Cancer Survivorship
www.canceradvocacy.org
Empowers survivors and advocates for policy issues that affect their quality of life
National Lymphedema Network
www.lymphnet.org
Or call: 800.541.3259
Education, referrals, and guidance for lymphedema patients
National Breast Cancer Coalition
www.natlbcc.org
Or call: 800.622.2838
Eradicate breast cancer trough action and advocacy
National Cancer Institute (NCI)
www.nci.hih.gov
Or call: 800.422.6237
Government institute for cancer, student referral for basic information on cancer; offers patient PDQ information on specific types of cancer.
National Ovarian Cancer Coalition
www.ovarian.org
Or call: 800.OVARIAN (800.682.7436)
Raises awareness on ovarian cancer and education, and action about ovarian cancer.
National Society of Geneic Counselors
www.nsgc.org
Or call: 610.872.7608
Provides a networkof professional communications involving all types of human genetics.
Oncolink
www.oncolink.com
Or call: 215.349.5445
Treatment options, clinical trial information, resources.
Susan G. Komen Foundation
www.komen.org
Or call: 800.462.9273
"Helpline" with trained volunteers, funds research and other cancer related programs (AVON Walk, Race for the Cure).
Women's Healthcare Education Network
Or call: 800.991.8877
Specialty items like wigs, maternity and nursing products, compression therapy products, prostheses, etc.
General Breast Cancer Information
Breast Cancer Answers Project
www.canceranswers.org
Provides clinical trial informaiton online and supports patients.
Cancer and Careers
www.cancerandcareers.org
Or call: 212.685.5955 ext. 15
Resource information & community for working women with cancer. Also has information and message boards for employers and co-workers/family/caregivers.
Casting For Recovery (CFR)
www.castingforrecovery.org
Or call: 802.362.9181
The mission of Casting For Recovery (CFR) is to provide fly-fishing retreats specifically tailored for women who have or have had breast cancer.
Department of Defense Decision Guide
www.pslgroup.com
An interactive guide through the decisions a newly diagnosed woman needs to make.
Gillette's Cancer Connection
www.gillettecancerconnect.org
Emotional support for women with breast cancer
If You've Thought About Breast Cancer by Rose Kushner
www.rkbcac.org
Rose Kushner started the Women's -- now the Rose Kushner Breast Cancer Advisory Center -- after she discovered her own breast cancer in 1974. This edition of her booklet "If You've Thought About Breast Cancer..." is the eighth in the series started in 1979.
John W. Nick Foundation, Inc.
www.johnwnickfoundation.org
Or call: 866.222.4441
Male breast cancer awareness; educates the public that men are at risk too.
Living Beyond Breast Cancer
www.lbbc.org
Or call: 888.753.5222
Oriented to survivors, conferences, special events, outreach programs, message boards.
National Action Plan on Breast Cancer
www.napbc.org
Or call: 800.994-WOMAN (800. 994-966626)
The National Action Plan is a public private partnership which sprung out of the demands of advocates.
National Association of Breast Cancer Organizations
Or call: 888.80-NABCO (888.806.2226)
www.nabco.org
Content from NABCO News, clinical trials and resources.
Producthealth
www.producthealth.com
Or call: 866.4-INDUCT (866.446.3828)
Ductal Lavage, the company that commercialized procedure.
Susan G Komen Breast Cancer Foundation
www.komen.org
The Susan G. Komen Breast Cancer Foundation Award and Research Grant Program supports innovative breast cancer research and a variety of meritorious awards.
The Rhonda Fleming Mann Resource Center for Women with Cancer
http://cancerresources.mednet.ucla.edu
The Rhonda Fleming Mann Resource Center is a special place designed to help women and their families face the challenges brought about by cancer and its treatments.
Y ME
www.y-me.org
National support organization. The sponsors of a hotline in Spanish and English.
Breast Cancer Advocacy: National
DIEP Reconstruction
www.diepflap.com
Or call: 504.894.2900
Site of developer of one type of reconstruction.
Faces of Hope
www.facesofhope.org
Or call: 716.872.5679
Faces of Hope is a nationally recognized not-for-profit educational breast cancer program that focuses on the importance of early detection and prevention. The program features a portable photo exhibit of breast cancer survivors.
Mothers Supporting Daughters with Breast Cancer
www.mothersdaughters.org
Or call: 410.778.1982
MSDBC is a national nonprofit organization co-founded by a mother and her daughter. The support services provided by this organization are designed to help mothers who have daughters battling breast cancer.
National Breast Cancer Coalition
www.natlbcc.org
Or call: 202.296.7477
The national advocacy group (Susan Love is one of the founders) responsible for increasing breast cancer funding to 900 million dollars. Good source of advocacy opportunities.
Sister's Network
www.sistersnetworkinc.org
Or call: 713.781.0255 ext. 30
Sisters Network is the first nationwide African-American breastcancer survivors organization targeting African-American Women.
Vital Options
http://www.vitaloptions.org
Vital Options is a not-for-profit organization using communications technology to reach every person touched by cancer. The Group Room dissolves the barriers of time and distance. It allows people from all walks of life, and in any physical condition to meet, talk, exchange information, and speak in a unified voice about the cancer experience.
WinABC
www.winabc.org
Or call: 866.2-WINABC (866.294.6222)
Women's Information Network Against Breast Cancer.
Support Groups
ENCOREplus
www.ymca.org
Or call: 800.95-EPLUS (800.953-7587)
Program of the YWCA of the U.S.A. peer-group support and exercise program for women over 50 in need of early cancer detection information and screening.
fertileHOPE
www.fertilhope.org
Or call: 888.994.4673
Helping cancer patients faced with infertility, research, education, financial assistance, and support groups.
Gilda's Cllub (National Hotline)
www.gildasclub.org
Or call: 888. GILDA-4-U (888.445.3248)
Information and support for all cancer patients and their famiies to meet; also offers free classes.
Hormone Foundation
www.hormone.org
Or call: 800.467.6663
Public education programs and information on hormone-related issues such as menopause, puberty, osteoporosis, breast cancer, etc.
KidsCope
www.kidscope.org
Or call: 404.892.1437
Helps families and children understand the effects of cancer on a parent using educational material.
KidsKonnected
www.kidsconnected.org
Or call: 800.899.2866
A support hotline for kids who ave a parent with cancer.
Living Beyond Breast Cancer
www.lbbc.org
Or call: 888.753.5222
A site oriented to survivors with news about conferences, special events, outreach programs, message boards.
Mothers Supporting Daughters with Breast Cancer
www.mothersdaughters.org
Or call: 410.778.1982
Helps women whose daughters have breast cancer.
National Lymphedema Network
www.lymphnet.org
Or call: 800.541.3259
Support group that gives information referrals.
Pregnancy With Cancer
www.pregnantwithcancer.org
Or call: 800.743.6724 ext. 308
Network of surviving women that were pregnant with cancer.
Sisters Network National Headquarters
www.sisternetworkinc.org
Or call:713.781.0255
African-American breast cancer survivors' organization.
Strength For Caring
www.strengthforcaring.com
An education and support website for cancer caregivers (including non-professionals) who will provide care for loved ones with cancer.
Support Group for Lesbians with Cancer
The Lesbian, Gay, Bisexual & Transgender Community Center, New York City
Call: 212.620.7310
Young Survival Coalition
www.youngsurvival.org
Or call: 212.577.6529
YSC is a group of survivors bringing people together to further issues surrounding breast cancer in young women.
Clinical Trials
Center Watch: Clinical Trials ListingService
www.centerwatch.com
Or call: 617.856.5900
Lists all kinds of trials not just breast cancer
National Breast and Bowel Project
www.nsabp.pitt.edu
The group responsible formost of the breast cancer clinical trials including the Tamoxifen prevention trial, STAR trial and lumpectomy and radiation trial.
NCI Cancer Trials
cancertrials.nci.nih.gov
Orf call: 800.4-CANCER (800.422.6237)
Listing of all cancer clinical trials
Menopause
North American Menopause Society
www.menopause.org
Or call: 440.442.7550
The award-winning Web Site of the North American Menopause Society (NAMS) provides accurate, unbiased answers.
Office of Research on Women's Health (ORWH)
www4.od.nih.gov/orwh
The Office of Research on Women's Health (ORWH), NIH, providing scientific information on menopausal hormone therapy, including updating information from the Scientific Workshop: Menopausal Hormone Therapy held October 23-24, 2002 which reviewed the results from the discontinued arm of the Women's Health Initiative clinical trial.
Powersurge
www.power-surge.com
One of the first and the best source of information for menopausal women
Social Services
American Cancer Society
www.cancer.org
Or call: 800.227.2345
Reach to Recovery (volunteer visitation program), Circle of Life (targets Native American women).
AIRLIFELINE
877.AIR-LIFE (877.247-5433)
Free nationwide service that flies patients to treatment centers nationwide.
Angel Flight America
www.angelflightamerica.org
Or call: 877.621.7177
Provides air transportation to patients with special needs.
Avon Breast Cancer Crusade
www.avoncrusade.com
Avon Crusade (online support groups),local Avon race information.
BreastCancer.org
www.breastcancer.org
News and events, health information.
Corporate Angel Network
www.corpangelnetwork.org
Or call: 914.328.1313
Free air transportation for cancer patients.
Eldercare Locator
www.eldercare.gov
Or call: 800.677.1116
Finds local services for senior citizens.
Look Good...Feel Better
www.lookgoodfeelbetter.org
Or call: 800.395.5665
Program to help women manage changes in their appearance resulting from cancer treatment.
Locks of Love
www.locksoflove.com
Or call: 888.896.1588
Referral for air donations, provides hair pieces to financially disadvantaged children.
Senior Information (65+ years of age)
AARP
www.aarp.org
Or call:* 800.734.7968
AARP Credit Card Services: * 800.322.2282
AARP Investment Program: * 800.424.3410
AARP Legal Services Network
Medicare Information
www.medicare.gov
Or call: 800.633.4227
Federal insurance program.
Eldercare Locator
www.eldercare.gov
Or call: 800.677.1116
Finds local services for senior citizens.
Social Security Administration (SSA)
www.ssa.gov
Or call: 800.772.1213
Provides monthly income for the elderly and disabled.
Young People Information (under 40 years of age)
Living Beyond Breast Cancer
www.lbbc.org
Or call: 888.753.5222
Scheduled conferences specifically for young survivors. Call to get information.
Pregnancy With Cancer
www.pregnantwithcancer.org
Or call: 800.743.6724 ext. 308
Network of surviving women who had cancer while pregnant.
Young Survival Coalition
www.youngsurvival.org
Or call: 212.577.6529
Group of survivors bringing people together to further issues surrounding breast cancer in young women.
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